fibromyalgia
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A Yorkshire Break
My husband and I are just home from a week in Yorkshire with our daughter and our dogs. It was wonderful. We were very lucky with the weather, our accommodation — a converted cowshed dating back to 1653 — was just lovely, and our trip there and back was uneventful: the best kind of journey…
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Don’t Talk to me About Life
I look back with nostalgia To when fibromyalgia Was merely a good score in Scrabble When getting up from my chair Did not make me swear And I could keep docs away with an apple. When at night I could sleep Pain would not make me weep And I could stand for a while without…
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(Dis)Ableism
Most of you will know I have fibromyalgia/cfs. I also have osteoarthritis, IBS, loads of allergies, chronic widespread tendonitis, bursitis… I’m in pain somewhere every day. I’m not fishing for sympathy, it’s just the way it is. I recently underwent a reassessment for my entitlement to PIP and this time they accepted how difficult I…
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Relax!
I cannot relax. I do my best, I try to regularly scan my body for signs of tension and make my muscles relax but, quicker than a midnight cramp, they go back to their default state. My legs are so tense they almost stand proud of the chair and my toes are doubled over in…
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Nil Desperandum!
When I had the unsatisfying appointment with the rheumatologist a couple of weeks ago, he mentioned referring me to the physiotherapist to have a cortisol injection in my hip. On Monday afternoon I got a call from Crosshouse Hospital to offer me an appointment the next morning. The physiotherapist, let’s call her Lucille, was very…
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Backup To The Future
There are all sorts of reasons why I haven’t blogged in so long and I don’t have the inclination – or the energy – to go into them all. Way back I had intended Friday blog posts to be fibro related so I thought I’d tell you about yesterday as an example of the effects…
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Anxiety and The Accidental Death Wish
When I was around nine years old I read Alice in Wonderland and Alice Through The Looking Glass. In one of these books, I can’t remember which, Humpty Dumpty tells Alice she should pick an age and stick to it. What a great idea, I thought! I’d choose to be twelve as that’s such a…
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The Invisible Illness
Fibromyalgia is a fickle illness. It is not steady with a small set of constant symptoms. Instead, we fibronauts have what we like to refer to as flares: days, weeks or months when every symptom you’ve ever had (and possibly a few new ones) happen all at once and at a severity that takes your…
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Snoozle Slide Sheet Review
One of the major issues for fibronauts is disturbed sleep and never waking refreshed. If you’re anything like me, I wake up every time I change position: already tight, aching muscles seem to scream in complaint when I try to move from one side to the other. And as for getting up… Facebook, using all…
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Going Home
We moved from our seaside cottage in Machrihanish to a flat on the fringes of Glasgow’s west end just two weeks before Christmas. It’s been a fraught couple of weeks. We still have boxes everywhere, at least 1/3 of our pictures have still to be hung and I have no idea where I put my…