fibro

  • Don’t Talk to me About Life

    I look back with nostalgia To when fibromyalgia Was merely a good score in Scrabble When getting up from my chair Did not make me swear And I could keep docs away with an apple. When at night I could sleep Pain would not make me weep And I could stand for a while without…

  • It will grow

    Whenever a woman does something drastic to her hair, there’s a reason. Here’s mine. I’ve been feeling much worse than usual over the past few months. Been so dry of mouth and eye, utterly exhausted, even by my standards, and oh, the pain. I hadn’t seen a doc since before Covid so booked a telephone…

  • (Dis)Ableism

    Most of you will know I have fibromyalgia/cfs. I also have osteoarthritis, IBS, loads of allergies, chronic widespread tendonitis, bursitis… I’m in pain somewhere every day. I’m not fishing for sympathy, it’s just the way it is.  I recently underwent a reassessment for my entitlement to PIP and this time they accepted how difficult I…

  • Nil Desperandum!

    When I had the unsatisfying appointment with the rheumatologist a couple of weeks ago, he mentioned referring me to the physiotherapist to have a cortisol injection in my hip. On Monday afternoon I got a call from Crosshouse Hospital to offer me an appointment the next morning. The physiotherapist, let’s call her Lucille, was very…

  • Colouring Outside The Lines

    When I was a wee girl I was given a painting by numbers set for Christmas one year. I loved the tiny pots of oil paint, the way the pigment sat at the bottom while the oil floated to the top, the smell, the colours. I was less keen on the result, the painting looking…

  • Backup To The Future

    There are all sorts of reasons why I haven’t blogged in so long and I don’t have the inclination – or the energy – to go into them all. Way back I had intended Friday blog posts to be fibro related so I thought I’d tell you about yesterday as an example of the effects…

  • The Invisible Illness

    Fibromyalgia is a fickle illness. It is not steady with a small set of constant symptoms. Instead, we fibronauts have what we like to refer to as flares: days, weeks or months when every symptom you’ve ever had (and possibly a few new ones) happen all at once and at a severity that takes your…

  • Snoozle Slide Sheet Review

    One of the major issues for fibronauts is disturbed sleep and never waking refreshed. If you’re anything like me, I wake up every time I change position: already tight, aching muscles seem to scream in complaint when I try to move from one side to the other. And as for getting up… Facebook, using all…

  • This will pass…

    Depression is a bugger, isn’t it? You can be bumbling along, happy as Larry, nary a care in the world when you suddenly stop short. There before you is a huge black hole, sucking all the joy, the fun, the light from your life, leaving you empty and unable to put one foot in front…

  • Dear Fibro…

    You know, I’ve had quite enough of fibromyalgia, thank you, and it can fuck right off. But of course, it’s a chronic illness and, as yet, incurable so I guess that’s not going to happen any time soon. Today, the bottom of my neck is very sore – I have a couple of fused vertebrae…