cfs
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(Dis)Ableism
Most of you will know I have fibromyalgia/cfs. I also have osteoarthritis, IBS, loads of allergies, chronic widespread tendonitis, bursitis… I’m in pain somewhere every day. I’m not fishing for sympathy, it’s just the way it is. I recently underwent a reassessment for my entitlement to PIP and this time they accepted how difficult I…
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Nil Desperandum!
When I had the unsatisfying appointment with the rheumatologist a couple of weeks ago, he mentioned referring me to the physiotherapist to have a cortisol injection in my hip. On Monday afternoon I got a call from Crosshouse Hospital to offer me an appointment the next morning. The physiotherapist, let’s call her Lucille, was very…
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Snoozle Slide Sheet Review
One of the major issues for fibronauts is disturbed sleep and never waking refreshed. If you’re anything like me, I wake up every time I change position: already tight, aching muscles seem to scream in complaint when I try to move from one side to the other. And as for getting up… Facebook, using all…
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Dear Fibro…
You know, I’ve had quite enough of fibromyalgia, thank you, and it can fuck right off. But of course, it’s a chronic illness and, as yet, incurable so I guess that’s not going to happen any time soon. Today, the bottom of my neck is very sore – I have a couple of fused vertebrae…
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You Look A Little Tired…
No shit sherlock. I look a little tired? But otherwise, I’m fine, right? Look, I normally don’t like to moan too much about my illness. It’s boring for me, it’s boring for you, but sometimes, if I don’t share how I feel, I’ll explode in a ball of stressed, angry, raging pain. This fibro flare…